The day after Christmas, Jonny Wade, a 7 year old twin, was diagnosed with a brain tumor and later that evening, had brain surgery. He had his first headache only 7 days prior. Soon after, it was confirmed that Jonny has a rare brain cancer called Medullobalstoma and it has spread to his spine. In less than 3 weeks, Jonny has undergone 5 surgeries, which 4 were in his brain. He now has a shunt due to a condition called Hydrocephalus, where fluid accumulates in the brain. Jonny has a year long treatment plan which includes Proton Radiation Therapy (brain and spine) followed by Chemotherapy, which both have horrific side effects. Since the cancer has spread, Jonny is considered high risk and there is a 50% chance of this cancer returning within 2 years. Jonny’s twin brother, Jacky, along with the family, has also been affected greatly. This fund was setup to help the family with all medical expenses related to Jonny as the family takes this journey.
#teamjonny
Facebook: Project Team Jonny
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https://www.gofundme.com/teamjonny
Send a Card to Jonny
Jonny loves the Cardinals baseball team, fishing, drawing, Skylanders for XBox, crafts, painting, music and anything electronic.
Jonny Wade
200 Lott Street
Jerseyville, IL 62052
UPDATE ON JONNY:
Thank you, God, for giving me a true angel on earth….
Jonny was fairly alert this morning but it went downhill this afternoon. He spent some time with Jacky and said several times “Jacky is a nice brother. He is nicer than me.”
Jonny felt like praying today. He sat up in bed and began to pray for quite a long time. He even sat back for a minute as he was tired and then sat up again to pray. He said nothing before or after his prayer. It was truly between him and God.
Jonny had a few seizures today but I think the medicine is starting to work as it has a delayed effect. The unfortunate part is that he is very confused most of the day. He doesn’t respond to us at times, will not understand when we are speaking and not remember things that happened an hour before. The neurologists believe that most of this confusion is likely permanent due to his disease.
Today, Jon and I requested to be moved from ICU to the 12th floor. Jonny’s breathing is fine so there was no need to stay in ICU. Therefore, we moved to the 12th floor earlier this evening. When we were being transported, Jonny kept asking me (as I rode on the bed with him) “Are they taking us to the gym?” When we arrived on the 12th floor, he became scared as he didn’t know where he was. Breaks my heart.
This evening, Jonny’s mental status had changed. He focused on playing with 2 dolls for about 2 hours without saying a word or responding to anyone. Then after getting him to bed, he called for me. Jonny called me over and reached out for a hug. He said “Thank you for loving me so much. I promise I love you.” Then he kissed me and said “Thank you for watching out for me and staying with me.” He said this in the sweetest angelic voice I’ve ever heard. I hope that sound remains in my mind until the day I die.
Well, I’m hoping we can get discharged on Tuesday or Wednesday. I want to get Jonny home and around his own things. Please continue to pray. This pain is more than I have ever imagined BUT I know God blessed me with a true angel on earth. And for that, I am thankful.
#teamjonny #amotherslove #hesanangel #brokenhearted #livingmomentbymoment #iamblessed #itrustGod
